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Private foundations don’t post open calls, so nobody can search them. We read IRS filings instead — 9.6 million grants from 174,053 foundations and grantmaking charities, searchable by what the money was actually for.

12 funders with a record of paying for “epilepsy”

Where the money went

1.0×
R O W Foundation → Direct Relief: $2.4M across 2 grants, latest 2024The Chicago Community Trust → The George Washington University: $1.3M across 1 grant, latest 2022The Lennox and Lombroso Fund → American Epilepsy Society: $848K across 4 grants, latest 2024Dravet Syndrome Foundation Inc → Regents of the University of Michigan: $779K across 1 grant, latest 2025Band Foundation → International Bureau for Epilepsy: $451K across 3 grants, latest 2024Epilepsy Coalition of New York State Inc → Epilepsy Association of Western New York: $276K across 4 grants, latest 2025Citizens United for Research in Epilepsy → The University of Iowa: $250K across 1 grant, latest 2022Chc Creating Healthier Communities → Epilepsy Foundation: $84K across 2 grants, latest 2023Danny Did Foundation → Epilepsy Foundation: $65K across 3 grants, latest 2024Epilepsy Alliance America Inc → Epilepsy Advocacy Network: $42K across 2 grants, latest 2024Jon Denzer Bear Hug Foundation → Grace Pritchard: $10K across 1 grant, latest 2023Enterprise Holdings Foundation → Epilepsy Foundation Greater Chicago: $10K across 4 grants, latest 2023R O W Foundation → Dispensary of Hope: $1.4M across 3 grants, latest 2024Epilepsy Coalition of New York State Inc → Epilepsy Foundation of Long Island: $276K across 4 grants, latest 2025Dravet Syndrome Foundation Inc → The Research Foundation for the State University of New York: $250K across 2 grants, latest 2025Citizens United for Research in Epilepsy → Emory University: $250K across 1 grant, latest 2022Band Foundation → Amref Health Africa Inc: $202K across 1 grant, latest 2024The Chicago Community Trust → Citizens United for Research in Epilepsy (Cure): $178K across 3 grants, latest 2022Danny Did Foundation → American Epilepsy Society: $45K across 3 grants, latest 2024Epilepsy Alliance America Inc → Epilepsy Services of New Jers: $40K across 2 grants, latest 2024Chc Creating Healthier Communities → Epilepsy Foundation of America: $35K across 1 grant, latest 2024Enterprise Holdings Foundation → Epilepsy Florida Inc: $9K across 3 grants, latest 2023Jon Denzer Bear Hug Foundation → Lindsey Russell: $5K across 2 grants, latest 2023R O W Foundation → Arabkir United Children's Charity Foundation: $630K across 3 grants, latest 2024Epilepsy Coalition of New York State Inc → Epilepsy Foundation of Metropolitan New York: $276K across 4 grants, latest 2025Citizens United for Research in Epilepsy → Stanford University: $250K across 1 grant, latest 2022Dravet Syndrome Foundation Inc → Case Western Reserve University: $216K across 1 grant, latest 2023Band Foundation → Citizens United for Research in Epilepsy: $157K across 2 grants, latest 2023The Chicago Community Trust → Brain Research Foundation: $144K across 1 grant, latest 2022Epilepsy Alliance America Inc → Epilepsy Alliance Louisiana: $40K across 2 grants, latest 2024Chc Creating Healthier Communities → Epilepsy Foundation Central & South Texas: $16K across 2 grants, latest 2024Enterprise Holdings Foundation → Epilepsy Foundation of America: $7K across 5 grants, latest 2023Jon Denzer Bear Hug Foundation → Dylan Fox: $5K across 2 grants, latest 2023Epilepsy Coalition of New York State Inc → Epilepsy Foundation of Northeastern New York Inc: $276K across 4 grants, latest 2025Epilepsy Coalition of New York State Inc → Epilepsy - Pralid Inc: $276K across 4 grants, latest 2025R O W Foundation → Americares: $151K across 2 grants, latest 2023Band Foundation → American Epilepsy Society: $150K across 1 grant, latest 2024R O W Foundation → Hospital Provincial General De Reference De Bukavu: $149K across 3 grants, latest 2024R O W Foundation → National Institute of Medical Research: $123K across 2 grants, latest 2024Band Foundation → Cornell University - Weill Cornell Medicine: $114K across 1 grant, latest 2022Citizens United for Research in Epilepsy → The Children's Hospital of Philadelphia: $100K across 1 grant, latest 2022R O W Foundation → University Teaching Hospital: $90K across 3 grants, latest 2024R O W Foundation → Healey International Relief Foundation: $79K across 3 grants, latest 2024Dravet Syndrome Foundation Inc → Children's Hospital of Philadelphia: $75K across 1 grant, latest 2024Dravet Syndrome Foundation Inc → Regents of the University of Michigan: $75K across 1 grant, latest 2024Dravet Syndrome Foundation Inc → The University of Utah: $75K across 1 grant, latest 2023Band Foundation → Epilepsy Foundation of America: $75K across 1 grant, latest 2023R O W Foundation → West Atlantic Brain & Stroke Foundation: $73K across 3 grants, latest 2024Citizens United for Research in Epilepsy → American Epilepsy Society: $63K across 4 grants, latest 2025R O W Foundation → Pretola Global Health and Consulting: $55K across 3 grants, latest 2024R O W Foundation → Brother's Brother Foundation: $50K across 2 grants, latest 2023R O W Foundation → Rwanda Pediatric Association: $50K across 2 grants, latest 2024The Chicago Community Trust → Joshprovides Epilepsy Assistance Foundation: $50K across 1 grant, latest 2022Citizens United for Research in Epilepsy → Mid-Atlantic Sleep and Epilepsy Center: $43K across 2 grants, latest 2025The Chicago Community Trust → Epilepsy Foundation of Greater Chicago: $43K across 3 grants, latest 2022The Chicago Community Trust → Citizens United for Research in Epilepsy: $41K across 1 grant, latest 2023Epilepsy Alliance America Inc → Epilepsy Alliance North Carol: $39K across 2 grants, latest 2024R O W Foundation → Queen Elizabeth Hospital: $38K across 3 grants, latest 2024Epilepsy Alliance America Inc → Epilepsy Assoc of Western An: $36K across 2 grants, latest 2024R O W Foundation → British Paediatric Neurology Association: $34K across 1 grant, latest 2023Epilepsy Alliance America Inc → Epilepsy Alliance Florida: $34K across 2 grants, latest 2024Epilepsy Alliance America Inc → Epilepsy Alliance Ohio: $34K across 2 grants, latest 2024Epilepsy Alliance America Inc → Joshprovides - Epilepsy Assis: $33K across 2 grants, latest 2024R O W Foundation → The Rotary Foundation: $30K across 1 grant, latest 2023R O W Foundation: $5.4M on this topic. Open the funder.R O W Foundation$5.4MThe Chicago Community Trust: $1.7M on this topic. Open the funder.The Chicago Community Trust$1.7MDravet Syndrome Foundation Inc: $1.5M on this topic. Open the funder.Dravet Syndrome Foundation Inc$1.5MEpilepsy Coalition of New York State Inc: $1.4M on this topic. Open the funder.Epilepsy Coalition of New Yor…$1.4MBand Foundation: $1.1M on this topic. Open the funder.Band Foundation$1.1MCitizens United for Research in Epilepsy: $956K on this topic. Open the funder.Citizens United for Research…$956KThe Lennox and Lombroso Fund: $848K on this topic. Open the funder.The Lennox and Lombroso Fund$848KEpilepsy Alliance America Inc: $298K on this topic. Open the funder.Epilepsy Alliance America Inc$298KChc Creating Healthier Communities: $135K on this topic. Open the funder.Chc Creating Healthier Commun…$135KDanny Did Foundation: $110K on this topic. Open the funder.Danny Did Foundation$110KEnterprise Holdings Foundation: $26K on this topic. Open the funder.Enterprise Holdings Foundation$26KJon Denzer Bear Hug Foundation: $20K on this topic. Open the funder.Jon Denzer Bear Hug Foundation$20KDirect Relief: received $2.4M on this topicDirect Relief$2.4MDispensary of Hope: received $1.4M on this topicDispensary of Hope$1.4MThe George Washington University: received $1.3M on this topicThe George Washington University$1.3MAmerican Epilepsy Society: received $1.0M on this topicAmerican Epilepsy Society$1.0MRegents of the University of Michigan: received $779K on this topicRegents of the University of Mi…$779KArabkir United Children's Charity Foundation: received $630K on this topicArabkir United Children's Chari…$630KInternational Bureau for Epilepsy: received $451K on this topicInternational Bureau for Epilep…$451KEpilepsy Association of Western New York: received $276K on this topicEpilepsy Association of Western…$276KEpilepsy Foundation of Long Island: received $276K on this topicEpilepsy Foundation of Long Isl…$276KEpilepsy Foundation of Metropolitan New York: received $276K on this topicEpilepsy Foundation of Metropol…$276KEpilepsy Foundation of Northeastern New York Inc: received $276K on this topicEpilepsy Foundation of Northeas…$276KEpilepsy - Pralid Inc: received $276K on this topicEpilepsy - Pralid Inc$276KThe University of Iowa: received $250K on this topicThe University of Iowa$250KThe Research Foundation for the State University of New York: received $250K on this topicThe Research Foundation for the…$250KEmory University: received $250K on this topicEmory University$250KStanford University: received $250K on this topicStanford University$250KCase Western Reserve University: received $216K on this topicCase Western Reserve University$216KAmref Health Africa Inc: received $202K on this topicAmref Health Africa Inc$202KCitizens United for Research in Epilepsy (Cure): received $178K on this topicCitizens United for Research in…$178KCitizens United for Research in Epilepsy: received $157K on this topicCitizens United for Research in…$157KAmericares: received $151K on this topicAmericares$151KEpilepsy Foundation: received $149K on this topicEpilepsy Foundation$149KHospital Provincial General De Reference De Bukavu: received $149K on this topicHospital Provincial General De…$149KBrain Research Foundation: received $144K on this topicBrain Research Foundation$144KNational Institute of Medical Research: received $123K on this topicNational Institute of Medical R…$123KEpilepsy Foundation of America: received $117K on this topicEpilepsy Foundation of America$117KCornell University - Weill Cornell Medicine: received $114K on this topicCornell University - Weill Corn…$114KThe Children's Hospital of Philadelphia: received $100K on this topicThe Children's Hospital of Phil…$100KUniversity Teaching Hospital: received $90K on this topicUniversity Teaching Hospital$90KHealey International Relief Foundation: received $79K on this topicHealey International Relief Fou…$79KChildren's Hospital of Philadelphia: received $75K on this topicChildren's Hospital of Philadel…$75KRegents of the University of Michigan: received $75K on this topicRegents of the University of Mi…$75KThe University of Utah: received $75K on this topicThe University of Utah$75KWest Atlantic Brain & Stroke Foundation: received $73K on this topicWest Atlantic Brain & Stroke Fo…$73KAmerican Epilepsy Society: received $63K on this topicAmerican Epilepsy Society$63KPretola Global Health and Consulting: received $55K on this topicPretola Global Health and Consu…$55KBrother's Brother Foundation: received $50K on this topicBrother's Brother Foundation$50KRwanda Pediatric Association: received $50K on this topicRwanda Pediatric Association$50KJoshprovides Epilepsy Assistance Foundation: received $50K on this topicJoshprovides Epilepsy Assistanc…$50KMid-Atlantic Sleep and Epilepsy Center: received $43K on this topicMid-Atlantic Sleep and Epilepsy…$43KEpilepsy Foundation of Greater Chicago: received $43K on this topicEpilepsy Foundation of Greater…$43KEpilepsy Advocacy Network: received $42K on this topicEpilepsy Advocacy Network$42KCitizens United for Research in Epilepsy: received $41K on this topicCitizens United for Research in…$41KEpilepsy Services of New Jers: received $40K on this topicEpilepsy Services of New Jers$40KEpilepsy Alliance Louisiana: received $40K on this topicEpilepsy Alliance Louisiana$40KEpilepsy Alliance North Carol: received $39K on this topicEpilepsy Alliance North Carol$39KQueen Elizabeth Hospital: received $38K on this topicQueen Elizabeth Hospital$38KEpilepsy Assoc of Western An: received $36K on this topicEpilepsy Assoc of Western An$36KBritish Paediatric Neurology Association: received $34K on this topicBritish Paediatric Neurology As…$34KEpilepsy Alliance Florida: received $34K on this topicEpilepsy Alliance Florida$34KEpilepsy Alliance Ohio: received $34K on this topicEpilepsy Alliance Ohio$34KJoshprovides - Epilepsy Assis: received $33K on this topicJoshprovides - Epilepsy Assis$33KThe Rotary Foundation: received $30K on this topicThe Rotary Foundation$30KEpilepsy Foundation Central & South Texas: received $16K on this topicEpilepsy Foundation Central & S…$16KGrace Pritchard: received $10K on this topicGrace Pritchard$10KEpilepsy Foundation Greater Chicago: received $10K on this topicEpilepsy Foundation Greater Chi…$10KEpilepsy Florida Inc: received $9K on this topicEpilepsy Florida Inc$9KLindsey Russell: received $5K on this topicLindsey Russell$5KDylan Fox: received $5K on this topicDylan Fox$5K
12 funders, 59 recipients, grants matching “epilepsy” only. Ribbon width is proportional to the total given; each funder has its own colour (smaller funders in gray). Hover a name to isolate its flows, click a funder to open it. Drag to move around; zoom with the buttons, a double-click, or the wheel after clicking the map.

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Source: IRS Form 990-PF Part XV and Form 990 Schedule I, tax years 2019–2025. These are grants already paid, a record of what an organization funds rather than an open call. Private foundations rarely accept unsolicited applications and the route in is usually a program officer; grantmaking charities and associations more often run real application cycles, so check their website. How this data is built, and its limits →